Thyroid Cancer changed my life in many ways. It restored my gratitude to a new level. So I’ve created this blog to share my thyroid cancer experience with you.
I’m a survivor! My hope is to help others find their ”inner-survivor” and live life to the fullest. Each day is a gift, so be thankful for it. In this moment, at this time, all is well!
May 13, 2009 at 12:45 pm
Jennifer, I think we have briefly chatted on twitter. I’m not sure if you have read my story.
Just wanted to tell you that you are not alone. I’m a thyroid cancer fighter as well.
HUGS to you!!
Kimberly
May 27, 2009 at 2:43 pm
Thanks for reaching out Kimberly! I always like connecting with fellow thyroid cancer “fighters” like yourself. Hugs back to you!!!
June 1, 2009 at 11:41 pm
Hi Jennifer. Thanks for getting this page out. I’m fighting a second time around. Thank God people are getting the word about this… I never realized how common this disease is until I got it. Best to you!
Colleen
August 2, 2009 at 1:09 am
I just found your blog via the Dear Thyroid Blog. I’m excited that you have a blog dedicated entirely to thyroid cancer. I was diagnosed and had a thyroidectomy in 2007 and then 6 months ago I had to go back under the knife to have some lymph nodes removed. I still feel like I am recovering from the second surgery…it was definitely harder than the first. This coming week I have a follow up ultra sound with my doctor. My blood work came back a few months ago showing some signs that there are still cells in there, so I’m not sure what the future holds. Keep up the good blogging!
September 21, 2009 at 2:51 pm
This blog rocks! I gotta say, that I read a lot of blogs on a daily basis and for the most part, people lack substance but, I just wanted to make a quick comment to say I’m glad I found your blog. Thanks,
A definite great read.. ..
-Bill-Bartmann
September 24, 2009 at 4:09 pm
Hi.
my name is SamanthaShelby Johnsonstone im a (12) month lukemia,bonemearrow trans plant baby i have type (2) Diabeties,& Congenetal heart disease i live in Alaska & i thank god im alive.
September 29, 2009 at 3:05 pm
Hi Samantah ~ It sounds like you are quite a survivor. Keep moving forward on your journey. I wish you the best.
October 9, 2009 at 3:48 pm
since my diagnosis (14 years ago!) it has been an issue with brief periods of fear, discomfort, and other complaints, but the vast majority of the time it has been something on the back burner — always there, but not boiling over. you just need to lift the lid and stir occasionally. thyroid cancer is, thankfully, a mostly manageable fight and with a lot of patience and hard work, and the support of other survivors, we can all get through it.
in fact, the most helpful tool in my fight was hearing from other people who had it too – getting information the doctors won’t give you (like how to hide a scar or the fact that you may sound like minnie mouse after surgery), and just getting empathy and support.
October 9, 2009 at 4:35 pm
Hey Carrie! I agree and really appreciate your comment. We can continue to get through as thyroid cancer survivors together! Stop back again soon
October 10, 2009 at 3:49 pm
I just found you through twitter (MyQSD username) and got a very nice direct message from you. Congratulations on your strength of will, determination, and getting through something so tough. People like you inspire me so thank you.
October 22, 2009 at 4:21 pm
Thank you Stephen for your kind words.
October 17, 2009 at 6:13 pm
I was diagnosed with thyroid cancer in 11/2007 had through a thyroidectomy. Had my first radioactive iodine treatment in 04/2008. Had another surgery 03/2009 and am going through my fun iodine diet again and will be getting iodine 131 on oct 23 2009.
I feel this diet is such a pain the list they gave me at the cancer center tells me i can have certain foods like pnut butter and ketchup and after I eat them I read that its only certain ones. The list totally contradicts itself. I feel like im gonna mess up this treatment . Did any one else feel this way.
I get so bummed out when my family eats good food while im around. It is so hard I cant wait to get this done and over the second time .
October 22, 2009 at 1:34 pm
I totally know how you feel about the diet. I was anxious the whole time that I was accidentally eating something wrong and I’d screw up my test, and there would be no uptake because I had eaten iodine, and they’d miss a recurrence. I quizzed every baker in the area and asked to see his salt. I re-read labels over and over. I called the tech at the hospital a hundred times — “what about broccoli? sweet potatoes?” i even asked her if my shampoo was a problem because it was made with sea salt.
Just keep telling yourself it’s only temporary.
October 22, 2009 at 4:29 pm
Carrie – you are too funny. I admire your sense of humor about the LID experience. I have found that having a positive attitude really goes a long way with it all. You’re right, it is only temporary.
October 22, 2009 at 4:25 pm
I understand how frustrating LID can be. I spent lots of time and money preparing for it. After 18 days worth of meals, I decided to take my knowledge and add it to my blog. I hope your LID went well. Please keep me posted on your progress. Wishing you the best!
October 22, 2009 at 4:34 pm
thanks – but i was serious! i’m laughing at it now, but at the time, i really was SO anxious about the whole thing and I really did call that poor woman at the hospital asking about shampoo. i’m sure she was happier than i was when my scan was done.
October 22, 2009 at 4:06 pm
I am so very pleased to see that you are bringing awareness to people and documenting your journey with thyroid cancer. I love that you are celebrating your survival and appreciating life rather than complaining and saying “poor me” about having cancer. I was diagnosed with Follicular Thyroid Cancer on June 18, 2009 – two days after my 23rd birthday. I love my scar because it represents my strength and reminds me to appreciate and love every day.
October 22, 2009 at 4:33 pm
Hi Jessica – Thank you so much for your thoughtful comment. I hope to bring awareness to as many people as possible about thyroid cancer and surviving! I see it all as a gift that has given me a new appreciation on life (once again). Please continue to keep me posted on your journey.
October 29, 2009 at 1:51 pm
hi everyone. my dignosis is hypothyroid for almost two years, now. I was with the synthetic T4 but it almost kill me. That was last Oct. For a year i have not treatment but still the symptoms persist. Then last week i found a information about Logul’s iodine and it seems to be very reasonable. I wonder if anyone of you all have try it and if it has to do with your survived journey?
November 4, 2009 at 10:22 am
Hi! this blog seems very unique indeed. As a six year thyca survivor (I’ve had a few surgeries and rounds of R.A.I and the cancer is still around but my doctor doesn’t want to overdo the R.A.I) I know how difficult it can be (in my experience) to connect with other Thyroid cancer survivors. I’ve often met ppl who have (through lack of understanding) told me I am lucky to have this type of cancer, which is a very strange thought; no one is ever lucky to have cancer! So I commend you for reaching out to others.
November 4, 2009 at 1:32 pm
Hi,I congradulate you on being a thyroid cancer surviver. You are doing a great job spreading awareness. I am glad I have came upon this site. I was diagnose with thyroid desease 3 wks ago and was put on symroid 25mg until more blood work is done. This is all new to me. does having too much mucus in my throat thats hard to clear have anything to do with thyroid? Thanks again for the awareness