Cancer SURVIVOR - The Journey

Created by a cancer survivor. Dedicated to those touched by cancer directly and indirectly.

Jacqui’s ThyCa Survivor Story

Here is my thyca story-

In November ’08 I started feeling not that great….my hair was falling out, I was gaining weight, had no energy…  I think I spent the better part of December in my bed, which is rare for me.   I went to my primary doctor and we tested my thyroid, he did not feel my neck.   Of course, the results were normal and he asked if maybe I was depressed or eating too much, which I have learned is a common response….by March ’09, St. Patrick’s Day to be exact and still feeling lousy, I had my annual gyno exam.    My doc said that my neck looked enlarged and after feeling it, she thought my thyroid was “engorged”.    I had a follow-up visit with my primary, he in turn looked at my last chart saying that my thyroid levels were normal, I asked him to please feel my neck and whoa, yes, its enlarged!   I had an ultrasound done about a week later and I had a very large nodule on the right side and a few small ones with calcification on the left side.   My primary insisted I see a certain endocrinologist which took 6 weeks to get an appt.    I was unhappy with the doctor so I found an ENT of my own.     We decided to definitely take out the right side with the large nodule and after I had a biopsy would decide on doing a TT.    Unfortunately my biopsy was not until the week before my scheduled surgery, my results were negative so I decided to just take out the right side.   June ’09 I had my first surgery and a week later was diagnosed with follicular cancer with hurthel cells….luckily my cancer was encapsulated in the tumor and had not spread to my lymph nodes.    July ’09, a month later, I had the TT and in August ’09 my RAI.    I just had my first year follow-up scan and Thyrogen in August ’10 and I am happy to say that it was clean!     So I consider myself in remission right now and will have two more years of body scans and of course  every 3 months blood work done.    My doctor tells me that after 5 years of no recurrence they will consider me cured!!     This has been quite a journey for me with gains and losses.    I have gained 70 lbs in the last year and a half because of the disease, but have gained a strength in myself that I didn’t know existed,……I have lost my two best friends because of the disease, but gained a close relationship with my father that was not there before….I have gained a huge respect for people fighting disease and the friends and family that support them.  That’s my story in a nutshell!!

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3 thoughts on “Jacqui’s ThyCa Survivor Story

  1. Hello and thanks for your story. Questions if you would.
    – What type of scan did you get for your follow up scan?
    ( I asked for a PET scan and was told they don’t do it for
    thyroid cancer!?)
    – You mention the loss of two friends – was that because they didn’t choose treatment – or had the treatment and still passed on? ( I’ve considered not seeking any treatment including the biopsy)

    Thank you if you reply – I’d appreciate it. – JKuzich SF CA

    please email me if you get this.

  2. YOUR STORY SOUNDS SO SIMILIAR TO MINE. IT IS ALMOST EERY. IM GLAD ALL WORKED OUT WELL FOR YOU AND I HOPE AND PRAY YOU CONTINUE TO STAY IN GOOD HEALTH.

  3. Thanks for sharing your story with us I am going in May 30 to have my left lobe and the ithsmus mremover I am very nervous. But on the other hand just want it to be over with. Glad you are cancer free what a feeling that must be!!

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