I met with my doctor yesterday afternoon. He went over the results of the blood work and neck ultrasound with me. My levels look good!! There were a couple of lymph nodes that we are watching, but they look normal on the scan. Once again, I am cancer free!!!
My levels of calcium and vitamin D were a little low. I should be taking calcium and vitamin D pills daily. My doctor smiled at me and said “Take the damn pills.” So this is something that I will start doing on a regular basis.
My doctor also told me to get Thyrogen shots and blood work to make sure we are not missing anything. Hmmmm…what? This caught me off guard. I got Thyrogen shots during the low iodine diet to help my body prepare for the radioactive iodine treatment, but I did not know that it could also be used to further test my levels My understanding of Thyrogen is that it tricks your body into thinking that you have gone off of your thyroid medication. This sure beats actually going off of your thyroid medication for a couple of weeks. (I have not had to do this, but know many people who have done it. More power to you!) Anyway, when I got my Thyrogen shots in May 2009, I was amazed to find out that my insurance company covered it. Each shot is around $1,200! Two are required to get the job done. So I was extremely grateful to my insurance company for covering the shots. Now, I am supposed to get the shots again?
What a great topic to blog about! I am going to do some research to learn a little more about Thyrogen. I plan to write another post about my findings soon. This opened up the door in my mind about the Thyroid Cancer SURVIVOR blog. There are still many topics that I would like to write about here. I’m going to do a “brain dump” to name a few. Here is my random list:
- Life beyond cancer
- Preparing for tests and doctor visits
- Affirmations and Mantras for cancer survivors
- Being an advocate for your health – Ask questions, Speak up, Second Opinions, Feel heard
- Health insurance coverage
- Calcium and Vitamin D post thyroidectomy
- Swallowing food post thyroidectomy
- Voice post thyroidectomy
- Hot and cold flashes
- Fertility with RAI (Radioactive Iodine)
That is all that comes to mind for now. I would really appreciate your feedback, experience and input on any of these items. What has your experience been? What other items would you like to see posted on this blog?